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The following is a list of websites we have found helpful. For suggestions for additional sites please contact us.

 

Informative Websites for Patients and Families

American Academy of Pediatrics (AAP)

General pediatric information including a link to Healthychildren.org, the AAP Parenting Website, which includes information for parents and is available in English or Spanish.

American College of Surgeons (ACS)

The Surgical Patient Education Program: Preparing for the Best Recovery provides surgical information for patients and families.

APSA LogoAmerican Pediatric Surgical Association (APSA)

Family and Parent resource pages that are designed to help patients and their families better understand what is happening when a child has been diagnosed with a medical or surgical condition.

APA Formatting and Style Guide

The Online Writing Lab (OWL) at Purdue University houses writing resources and instructional material, a free service of the Writing Lab at Purdue. Students, members of the community, and users worldwide will find information to assist with many writing projects. The Writing Lab contains great information on APA (American Psychological Association) style, which is used widely by nurses in research and practice including APSNA publications.

CDH International

Created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness.

Centers for Disease Control and Prevention (CDC)

The Centers for Disease Control and Prevention (CDC) is the leading national public health institute of the United States. Its main goal is to protect public health and safety through the control and prevention of disease, injury, and disability both in the US and internationally. The CDC focuses national attention on developing and applying disease control and prevention.   

Cerebral Palsy

Cerebral Palsy Guidance offers information and resources to aid parents and caregivers of children with cerebral palsy. This includes learning about treatment options and how to help manage the disorder so your child can still live a productive life.

Chest Wall International Group  (CWIG) 

The Chest Wall International Group is a group for anyone interested in care and treatment of patients with chest wall anomalies. They hold an international conference annually which focuses on clinical research and treatment protocols. It is very surgeon based but there are informational sheets on the different chest wall anomalies, a reference section and information about the annual conference.

Children’s Hospital Association (NACHRI)

Representing more than 220 children’s hospitals, the Children's Hospital Association (CHA) advances child health through innovation in the quality, cost and delivery of care with children’s hospitals.

Children's Oncology Group (COG)

COG provides important information for children and their families from the time of diagnosis through treatment and following cure.

Choosing Wisely

Choosing Wisely is an initiative of the American Board of Internal Medicine Foundation (ABIM) that seeks to advance a national dialogue on avoiding unnecessary medical tests, treatments and procedures. The American Academy of Nursing (AAN) announced in 2014 that it has joined the ABIM Choosing Wisely campaign with a list that focuses specifically on nursing interventions or practices that are not supported by evidence. The Choosing Wisely campaign is in alignment with the recent focus on patient-centered care, identified as one of the factors necessary for high-quality health care in a 2001 report from the Institute of Medicine. It is also worth noting that the initiative is in accord with goals of the Affordable Care Act (ACA), which has focused attention on improving quality of care while also controlling costs by reducing the use of unnecessary and sometimes harmful procedures and tests.

CSurgeries

CSurgeries is an online surgical video journal dedicated to creating a centralized source of peer-reviewed surgical videos that are accessible to a wide audience, including students and professionals in all surgical disciplines.

Esophageal Atresia/Tracheoesophageal Fistula ea | tef

The EA/TEF Family Support Connection was formed by and for families of children born with esophageal atresia and tracheoesophageal fistula and the medical professionals who treat them. The site provides educational resources as well as emotional and practical support to aid in the daily care of our medically fragile children.

Extracorporeal Life Support Organization

Extracorporeal Life Support Organization is an international non-profit consortium of health care centers and individuals who are dedicated to the development, evaluation and improvement of extracorporeal membrane oxygenation (ECMO) and other innovative therapies for support of failing organ systems in the neonate, child and adult. ELSO is made up of a broad multidisciplinary collaboration of physicians, nurses, perfusionists, respiratory therapists, technicians, researchers, and industry experts. Global chapters of ELSO provide education and expertise in ECMO delivery around the world.

Feeding Tube Awareness Foundation

The Feeding Tube Awareness Foundation was founded in 2010 to support parents of children who are tube-fed, while raising positive awareness of tube feeding as a lifesaving medical intervention. The website is dedicated to providing pragmatic information for parents and caregivers on handling every aspect of tube feeding and navigating day-to-day life with a child who is tube-fed. The education materials are written in lay terms by those with personal experience.

Healthcare Toolbox

Increase awareness and recognition of medical traumatic stress.

The HIE Help Center

The HIE Help Center seeks to support and inform the families and loved ones of children with disabilities stemming from hypoxic-ischemic encephalopathy (HIE) with the aim to be a useful one-stop information center to help families navigate disability resources.

Oley Foundation

Striving to enrich the lives of those living with home intravenous nutrition and tube feeding through education, advocacy, and networking.

One Nurse at a Time

Is a 501 (c)(3) nonprofit organization created by nurses who are passionate about giving back to local and global community through volunteer and humanitarian medical pursuits. They are dedicated to assisting other nurses enhance the nursing profession as they too, looking for opportunities to serve locally, nationally and internationally. One Nurse at a Time offers scholarships, education and networking opportunities for like -minded nurses.

Pediatric Orthopaedic Practitioner Society (POPS)

POPS is the Pediatric Orthopaedic Practitioner Society which was established in 2005. Their goal is to support continuing education, research, training and mentorship of nurse practitioners working in the area of pediatric orthopaedics. They have a Patient and Parent Education Resources page and hold a national conference every two years.

Pull-thru Network

Providing information, education, support and advocacy for families, children, teens and adults who are living with the challenges of congenital anorectal, colorectal, and/or urogenital disorders and any of the associated diagnoses.

Safe Kids Worldwide

Safe Kids Worldwide is a nonprofit organization working to help families and communities to help keep children safe from injuries. Safe Kids works with an extensive network of more than 400 coalitions in the United States.  Additionally, they have partners in more than 30 countries to reduce traffic injuries, drownings, falls, burns, poisonings and more.

Stopthebleed.org

BleedingControl.org is an initiative of the American College of Surgeons and the Hartford Consensus and contains diagrams, news, videos, and training courses to help prepare you in the event you are witness to massive bleeding from any cause, but particularly from an active shooter or explosive event where a delayed response can result in death. The purpose of the STOP THE BLEED® campaign is to make the nation more resilient by better preparing the public to save lives if people nearby are severely bleeding. This preparation is being done by raising awareness and teaching people how to learn three quick actions to control serious bleeding.

United Ostomy Association

United Ostomy Associations of America (UOAA) promotes quality of life for people living with ostomies and continent diversions through information, support, advocacy and collaboration.


Professional Organizations

American Association of Neuroscience Nurses (AANN)

American Nurses Association (ANA)

American Society for Parenteral and Enteral Nutrition (ASPEN)

Association of Pediatric Hematology/Oncology Nurses (APHON)

Association of periOperative Registered Nurses (AORN)

Association of Women’s Health, Obstetric and Neonatal Nurses (AWHONN)

Infusion Nurses Society (INS)

International Pediatric Endosurgery Group (IPEG)

National Association of Orthopaedic Nurses (NAON)

National Association of Pediatric Nurse Practitioners (NAPNAP)

Oncology Nursing Society (ONS)

Pediatric Trauma Society (PTS)

Pediatric Urology Nurse Specialists (PUNS)

Society of Otorhinolaryngology and Head-Neck Nurses (SOHN)

Society of Pediatric Nurses (SPN)


APSNA, Inc. (APSNA) will not be held responsible in any way for the content of web sites connected to this site but published by other parties, and in providing links to these sites, APSNA neither endorses the publishers nor attests to the accuracy of their information.
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